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Parry Romberg Syndrome Synonym(s): Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Studies with patients Table of Contents (click to jump to sections) What is Parry Romberg?Is there any treatment? What is the prognosis? What research is being done? Organizations What is Parry Romberg? Parry-Romberg syndrome is a rare disorder characterized by atrophy (wasting away) of the tissue on one side of the face. The atrophy may also affect the tongue, soft palate, and mucous membranes of the gums. Muscle and bones are rarely affected. The eye and cheek of the affected side may become sunken. In some cases, pain may occur and facial hair may turn white and fall out. Some individuals with this disorder may experience migraine-like headaches, trigeminal neuralgia, or seizures which originate from the opposite side of the body. Is there any treatment? What is the prognosis? What research is being done? National Organization for Rare Disorders (NORD)
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