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  Neurosarcoidosis 
  
Reviewed  11-6-2002  

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Table of Contents (click to jump to sections)

What is Neurosarcoidosis?
Is there any treatment?
What is the prognosis?
What research is being done?

Organizations

What is Neurosarcoidosis?
Sarcoidosis is a progressive multi-system disease that commonly affects young adults. Neurosarcoidosis refers to the neurological manifestations of sarcoidosis. Symptoms vary widely and may include facial palsy, muscle weakness and wasting, numbness in various parts of the body, excessive thirst, fatigue, headache, seizures, lethargy, fever, memory loss, hallucinations, irritability, agitation, depression, loss of taste, and voice, hearing and vision impairments.

Is there any treatment?
The cause for sarcoidosis is unknown, and there is no cure. Corticosteroids or immunosuppressive drugs may relieve symptoms in selected patients.

What is the prognosis?
The prognosis for patients with neurosarcoidosis varies. Most individuals with the disorder respond to treatment and, therefore, fare well. In some cases, the disorder disappears after a few months; in other cases, it progresses slowly but steadily. For a small percentage of individuals the complications may be fatal.

What research is being done?
The NINDS supports and conducts research on disorders of brain, with the goal of finding ways to prevent and treat these disorders.

Select this link to view a list of studies currently seeking patients.

 Organizations

Sarcoidosis Research Institute
3475 Central Avenue
Memphis, TN 38111
paula@sarcoidosisresearch.org
http://www.sarcoidosisresearch.org
Tel: 901-766-6951
Fax: 901-744-7294

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Eye Institute (NEI)
National Institutes of Health
Bldg. 31, Rm. 6A32
Bethesda, MD 20892-2510
2020@b31.nei.nih.gov
http://www.nei.nih.gov
Tel: 301-496-5248 Professionals 800-869-2020

National Institute of Allergy and Infectious Diseases (NIAID)
National Institutes of Health
31 Center Drive, Rm. 7A50 MSC 2520
Bethesda, MD 20892-2520
(see website)
http://www.niaid.nih.gov
Tel: 301-496-5717

National Heart, Lung, and Blood Institute (NHBLI)
National Institutes of Health
Bldg. 31, Rm. 4A21
Bethesda, MD 20892
http://www.nhlbi.nih.gov
Tel: 301-592-8573 800-575-WELL (-9355)


NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.

All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated.


Provided by:
The National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892




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